Journal of Sacred Work

Caregivers have superpowers! Radical Loving Care illuminates the divine truth that caregiving is not just a job. It is Sacred Work.

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Stories, poetry, art, music, all help us to understand our place in the world.  – Erie Chapman

Storybook   "Once upon a time…" It’s one of the earliest and happiest ways we learn about our world. Perhaps that is why of the four things listed above, stories seem to be easiest as a way to communicate meaning. This explains the enormous power of movies, books, television dramas, and situation comedies.

   In spite of the power of stories, many leaders, teachers and sometimes doctors insist on communicating primarily through stiff instruction. We all need the basic tools of learning. Once the tools are clear, we need to appreciate the power of story-telling. The most important things we learn about our families are through stories. And loving caregivers always appreciate that every patient hold many stories in their heart…

   In caregiving, story-telling is one of the ways we humanize each other, our work, and the patients for whom we care. If we see another human being only by their diagnosis, we have denied all of the rich history that brought this patient to the encounter. In fact, the failure to recognize another human as a carrier of many rich stories is actually a problem in caregiving.

   How often have you heard well-meaning nurses refer to elderly males as "that nice little old man?" They don’t mean to be demeaning, but the truth is, I doubt any older gentleman wants to be referred to as  a "little old man" regardless of his size. The next step can be condescension since our description immediately places us as someone "big" looking down on the smaller, older, and perhaps weaker person before us. "How are we today, honey?" the nurse may say, in a tone that suggests that the older person has the mentality of a three-year-old instead of that of a thinking adult with a textured life history.

   Whenever caregivers position themselves as "better than" their patients, loving care is placed at risk. A good solution is to learn some of the patient’s story. As the stories unfold, dimensions are added to the patient’s life and the chance for mutual respect rises.

   Awhile back, I shared the effort of Doreen Dunn, COO of St. Jude Hospital in California, to develp the My Story program. This beautifully simple program enables caregivers to learn by asking the patient and family to fill out a one page form that reports personal information about the patient including likes, dislikes, and some non-medical biographical information.

   Since I reported this in the Journal, at least three other hospitals have adopted the program including Parrish Medical Center in Floriday, Mercy Gilbert in Arizona, and St. Mary’s Hospital in Southern California. I urge you to engage My Story in your organization and in your work.

   Whether you use a story form or not, it is helpful to consider what you would want your caregivers to know about you if you were hospitalized. The trauma of hospitalization is such that when nurses or doctors become patients, they seem anxious to let their caregivers know that they are trained caregivers themselves – part of the "in-group."

   Why is this so? Hospitals can be frightening places. And our stories are critical to who we are.

-Erie Chapman 

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3 responses to “Stories As Teaching”

  1. liz Wessel Avatar
    liz Wessel

    I loved Diane Gallagher’s story shared with readers yesterday!
    When you speak of caregivers’ learning some of a patient’s story I realize what a special caregiving experience home health offers. When invited into a patient’s home caregivers find themselves immersed in intimate surroundings that provide valuable clues to a person’s unique story. The family ancestry photos and of memorable occasions, grandma’s needlepoint, Bob’s train hobby, and Jack’s boisterous teenage friends, all part of the rich fabric of a person’s world. Reminiscence and meaningful life review become a natural part of conversation. The spectrum of light with it’s intensity and hues vary greatly. Some patient situations lack any comfort or support. Loneliness rattles around empty houses that were once homes filled with activity and life. Poverty, unsanitary and crowded living conditions tell stories of suffering and social inequities. The comings and goings of home care is often times chaotic, uncontrolled, and messy yet all part of what makes life precious and real.
    It is hard not to care in home health when all is so personal. It is hard not to take notice when you walk into someone’s life story. Just ask any home health caregiver about what it is they do and you are bound to hear a love story.

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  2. liz Wessel Avatar
    liz Wessel

    P.S. Thank you for helping promote Doreen Dann’s, “My Story.” I am so happy to hear that others are integrating this simple yet effective tool into cargiving practices across the country!

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  3. Mary Jean Powell, MSW Avatar
    Mary Jean Powell, MSW

    This column helped me to consider how much of my life I spend in stories. Stories in the movies and on t.v. seem like safe places to escape. I can enjoy them and also pull back and change the channel if I don’t like the way the story is going. I wonder if I do that sometimes in my work. Some days I get tired of the similarity of some of the stories that come before me and feel as though I may be “changing the channel” and not fully hearing my clients. This is a good reminder of the many dimensions to every person, and how most of them are hidden.

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