Journal of Sacred Work

Caregivers have superpowers! Radical Loving Care illuminates the divine truth that caregiving is not just a job. It is Sacred Work.

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   Secrets twine through us like the bones of trees that support the darkness.

 Darkness   On a lovely afternoon in May, 1963, my doctor sent a cloud across the sun. "You have an incurable disease," he told me. "You might not live to age 40. You're five times more likely to contract cancer. Your prognosis is not good."
   If I wanted to beat his prediction, he said, I would need to live a careful life filled with as little stress as possible.
   "But, I'd like to be a lawyer," I told him. "I'm also considering a career in politics."
   "Out of the question," he said. 'That kind of work will kill you."
   In the spring of '63, President John Kennedy still lived. Millions of young women and men, including me, were inspired by his example. Politics seemed like an appealing choice back then.
   I was nineteen years old and a sophomore at Northwestern University. And I was ambitious.
   What my doctor told me remained a secret for much of my life. I had contracted an auto-immune illness called Crohn's disease in that awful spring. And I kept that news to myself. I didn't want people thinking I was disabled, a sort of cripple. I didn't want anyone's pity. I didn't want this disease to control my life. So, I struggled with this secret by myself.
   Of course, my parents knew. But, they didn't understand. Back then, you couldn't just Google Crohn's disease and get a sense of what that illness was about. Eventually, I told my fiancee who became (and still is) my wife. She carried the secret with me, sharing my burden through the long nights when my body was inflamed as it attacked itself.
   Fortunately, I ignored my doctor's advice and became not just a lawyer, but a trial attorney. During law school, I had a brief flirtation with politics when I became a staff aid to a prominent Congressman.
   Fate, in the form of a kind old fellow named Bruce Trumm, drew me into the strange world of hospital leadership. Meanwhile, I told no one else about my secret struggle for many years.
   Don't all of us carry on some secret struggle within us? A difference between acute pain and a chronic illness is that we may develop some level of amnesia for a specific episode of agony. Chronic illness, on the other hand, provides a daily reminder of life's discomfort. It can help us stay present to the pain of others.
   Every patient who comes to the hospital or a charity with an obvious affliction is treated by a caregiver who has her or his own secret struggle churning within. These secret struggles can awaken within us the compassion we need to express when caring for the vulnerable patients before us.
   We need to be in touch with our own pain in order to relate to the agony of others. At the same time, we need to maintain our strength so that we can bring aid to those who need our help.
   The source of our strength rests in the endless power of Love. It is Love which provides our light and our salvation. When we let Love shine through us, our secrets depart from the shadows and dissolve in the light. In the presence of Love, secrets lose their power to frighten and terrorize us.
   How do your secret struggles inform your caregiving?

Erie Chapman

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4 responses to “Day 140 – Secret Struggles”

  1. ~liz Wessel Avatar
    ~liz Wessel

    I appreciate the wisdom and depth of your sharing with vulnerability and such Love. Thank you!
    I think back to 1977, I had graduated nursing school in June and had came home for an extended visit. When summer ended and I said goodbye to my family in Vermont and headed down to New York. I was to be the maid of honor in my best friend, Susan’s wedding, and then planned on returning to CA. That morning the news came, by oldest brother Phillip was killed in a car accident. I decided to attend Sue’s wedding before returning to Vermont. It was the most surreal day of my life. I was numb and apparently in shock. The day of the funeral, I had to catch a plane back to California for I was starting my first nursing job the following day, as an oncology nurse at St. Joseph Hospital. I felt so alone. I was 22, since this was a new job, I did not know anyone, and hence I never told anyone about my brother’s death or my grief. I was able to be of help to patients and families, giving chemotherapy, providing care, tending to their pain, their dying, their suffering, their grief. Looking back, I can’t help wonder how I survived that time. I really don’t think I grieved. I did not know how or understand the process. I just immersed myself in my work. Through the years, I’ve learned so much from the patients and families I cared for. They taught me how to love and how to grieve.
    I feel as though for most of my life I have struggled with a deep sense of unworthiness, of not being worthy of love. I have struggled to prove my self to overcome feelings of inadequacy. I’ve been reading about struggle in David Whyte’s book. This profound passage stood out for me. “We want to attain a balance point between two ends of the extremes, between innocence and experience, aloneness and togetherness, and find, if we do manage to attain it a bland beauracratic middle that knows nothing of either. The full terror of our aloneness is the force that makes us praise the meeting with others. The terror of intimacy and belonging gives us the depth and appreciation for aloneness. The souls’ journey even in the most faceless corridors of a large corporation is the winding, downward path into a depth of experience where our aloneness and intimacy with others are held to be indivisible.”
    I find it strange, that what I long for most, I also fear.
    What you say about Love is so true, I am learning that secrets do dissipate in light. Love is teaching me that I am worthy, and that there is nothing to prove. I am learning how expansive Love is.
    “Let the waters settle
    you will see stars and moon
    mirrored in your Being.”
    — Rumi

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  2. Karen York Avatar
    Karen York

    Secrets help me with empathy and non-judgement. At an earlier point in my life, it was easy to hear about a deed that someone had done and say “I would never do that…” With life’s experience I am learning that each of us is capable of doing just about anything. Each of us is searching for love. I guess the “secret” is to love ourselves in the midst of our secrets and shadowy places. I love your line about the secrets dissolving in love’s light. Thank you.

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  3. Victoria Facey Avatar
    Victoria Facey

    I am so moved by today’s subject and the additonal comments. Thank you for each of your contributions.

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  4. melissa scott Avatar
    melissa scott

    I am almost speechless. I would just like to thank everyone for sharing too.

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