Journal of Sacred Work

Caregivers have superpowers! Radical Loving Care illuminates the divine truth that caregiving is not just a job. It is Sacred Work.

About

   Our generation has the gift every generation is offered. We have the chance to stand on the shoulders of every giant who came before us and to look out Billyacross the panorama of our world. The wisdom and genius of our legions of ancestors is available to us if we are present to us. We can incorporate their advice into our own memories and make their wisdom a part of our lives. There is also the wisdom and genius of contemporary giants. One of them is Billy Collins.

   Collins poetry surpised many who have feared language written in stanzas. As they read his words, they are surprised to discover a new presence to life.

   Billy Collins, America’s former Poet Laureate, offers us poetry that is not only brilliant but accessible. As caregivers consider how poetry can enrich their lives, they may look to the example (below) of his poignant insight and consider how poetry can enrich and inform the lives of caregivers who, in this case, may be looking after those who have forgotten key things in their lives – the names of their children, their own name, what happened five minutes ago…

Forgetfulness

The name of the author is the first to go
followed obediently by the title, the plot,
the heartbreaking conclusion, the entire novel
which suddenly becomes one you have never read,
never even heard of,

as if, one by one, the memories you used to harbor
decided to retire to the southern hemisphere of the brain,
to a little fishing village where there are no phones

Long ago you kissed the names of the nine Muses goodbye
and watched the quadratic equation pack its bag,
and even now as you memorize the order of the planets,

something else is slipping away, a state flower perhaps,
the address of an uncle, the capital of Paraguay.

Whatever it is you are struggling to remember,
it is not poised on the tip of your tongue,
not even lurking in some obscure corner of your spleen.

It has floated away down a dark mythological river
whose name begins with an L as far as you can recall,
well on your own way to oblivion where you will join those
who have even forgotten how to swim and how to ride a bicycle.

No wonder you rise in the middle of the night
to look up the date of a famous battle in a book on war.
No wonder the moon in the window seems to have drifted
out of a love poem that you used to know by heart.       

   Collins’ charming and heartbreaking poem touches the way we perceive life. Our memory informs so much of our being that we can’t imagine being without out, much less gradually beginning to lose it.
   Caregivers who look after Alzheimer’s patients encounter, every day, the strange images of Alzheimers perfectly normal looking human beings who can’t recall what happened five minutes ago. If you’ve been close to someone who has experienced this hard reality, you have a sense for the challenge caregivers face.
   Years ago, my late mother-in-law, who had looked after her stroke-ridden husband faithfully for many years, traveled the tortuous descent into the painful valley of Alzheimers. A lifelong lover of literature and drama, and a saintly person in so many ways, the disease gradually captured not only her memory, but began to steal her personality as well.
   The process can leave us wondering who we are.
   Landmark studies by Drs. Ronald and Jan Glaser at Ohio State University have demonstrated the enormous stress caregivers face. Especially family members who may be engaged in round-the-clock care. The Glasers have demonstrated that stressed caregivers suffer from increased physical illness and that they recover more slowly from injuries.
   A small number of quality respite programs around the country recognize and treat this problem by offering relief to caregivers. In light of the rising population of elderly, our country needs to recognize the dramatic need for respite care and the need for significant funding of these programs.
   Meanwhile, if you know a caregiver who’s taken the responsibility to look after a patient with dementia, or anyone else who’s house bound, today is an opportunity to begin offering help, and the respite our love can bring, before we become the ones who "forget."

Posted in

3 responses to “Memory of Life – The Need for Respite”

  1. liz Wessel RN, MS SJHS Home Health Network, Orange, CA Avatar
    liz Wessel RN, MS SJHS Home Health Network, Orange, CA

    My friend Janice who used to have a high paying job in the corporate world left it behind in midlife to find more meaningful work. She is a gifted caregiver for Alzheimer’s patients and loves her calling. Janice described how she cares for an elderly gentleman. Each week they take a walk to a local park and through a nearby cemetery. Each time they follow the same routine, stop and visit his wife’s grave, sit on the same park bench, share in the same conversation, look at the same points of interest. Each time Janice enthusiastically engages with this gentleman as though she is hearing his story for the first time. She does not tire of this routine but instead finds great joy in being able to offer companionship, and to foster his dignity.
    A co-worker’s mother suffered with Alzheimer’s disease. Each weekend my friend would drive some distance (1.5 hours) to visit her parents. Once very fastidious about her appearance, bathing and donning clean clothes had become a major issue. Rorie would struggle to assist her mom to shower and it was very frustrating. She attended a class to help her learn how to best deal with her mother’s behavior. She initiated new strategies and began finding the path of least resistance. Prior to bathing, she and mom would socialize and share a favorite beverage, a small glass of beer. This seemed to please and relax her mom enough so that the shower routine became much more manageable for both of them.
    Thanks for challenging us to reach out to offer support to our friends and families who are trying to cope with such a frightening and devastating disease. I agree we need to advocate for funding of much needed respite programs (and personal care services) for people in our community.

    Like

  2. Erie Chapman Avatar
    Erie Chapman

    Liz,
    Thank you for these lovely stories of caregiving and for the wisdom of accepting Alzheimer’s patients where they are. I have been surprised at the degree to which family members will sometimes try to correct the recollections of these patients by saying: “You told us that already.” This is somewhat like asking a blind person to tell us the color of the wall.
    Alzheimer’s patients need the gift of smiling agreement rather than stern correction for something they cannot remedy.
    Thank you.
    Erie Chapman
    Remembering the Importance of Respite Care

    Like

  3. Laurie Ames, R.N. Avatar
    Laurie Ames, R.N.

    Thank you for drawing attention to those who care for the Alzheimer’s patients. It is exhausting and difficult work and these people are heroes.

    Like

Leave a comment