Journal of Sacred Work

Caregivers have superpowers! Radical Loving Care illuminates the divine truth that caregiving is not just a job. It is Sacred Work.

About

Today's meditation was written by Cathy Self, Senior Vice President for the Baptist Healing Trust.

    Illness I spent the evening sitting with a friend who is enduring unspeakable pain and deep sadness. When she spoke, though it was not often, she noted how helpless she feels, how out of control life had become. "It's hard to be cared for," she quietly noted, "and I can't find the words I need." My thoughts later that night drifted to words written years ago by author Virginia Woolf.

     In  1925, wanting to begin work on a dreamed-of autobiographical novel, Woolf instead lay ill for several months, producing an essay on illness itself. It first appeared in T. S. Elliots New Criterion. She began her essay with these words:

"Considering how common illeness is, how tremendous the spiritual change that it brings, how astonishing, when the lights of health go down, the undiscovered countries that are then disclosed, what wastes and desets of the soul a slight attack of influenza brings to light, what precipices and lawns sprinkled with bright flowers a little rise of temperature reveals, what ancient and obdurate oaks are uprooted in us in the act of sickness, how we go down into the pit of death and feel the waters of annihilation close above our heads and wake thinking to find ourselves in the presence of the angels and the harpers–when we think of this and infinitely more, as we are so frequently forced to think of it, it becomes strange indeed that illness has not taken its place with love, battle, and jealousy among the prime themes of literature" (Essays 4:317).

     One barrier to the inclusion of illness as a part of life and as reflected in literature may be, as my friend struggled to articulate, the very limitations of language needed to truly describe the experience. Woolf goes on to write:

"English, which can express the thoughts of Hamlet and the tragedy of Lear, has no words for the shiver and the headache. . . . The merest school-girl, when she falls in love, has Shakespeare, Donne, Keats to speak her mind for her; but let a sufferer try to describe a pain in his head to a doctor and language at once runs dry. . . . In illness words seem to possess a mystic quality . . . In health meaning has encroached upon sound. Our intelligence domineers over our senses. But in illness, with the ploci off duty, we creep beneath some obscure poem . . . some phrase in Latin or Greek, and the words give out their scent, and ripple like leaves, and chequer us with light and shadow, and then, if we at last grasp the meaning, it is all the richer for having traveled slowly up with the bloom upon the wings" (Essays 4:196).

     What startles me most in Woolf's words is how she identified illness with a needed and desired solitary realm: "Human beings do not go hand in hand the whole stretch of the way. There is a virgin forest in each; a snow field where even the print of birds' feet is unknown. Here we go alone, and like it better so. Always to have sympathy, always to be accompanied, always to be understood would be intolerable."

     Stopping to consider the inner life of the one in our care gives rise to so many questions–how does this person experience life now? How might she feel about being dependant on me for her care? What words does she need to express her pain or her experience of this moment? Does she, like Woolf, desperately wish she could just be alone again with times in the virgin forest? How does Love respond to these questions?

Posted in

4 responses to “Day 169 – Sitting With Illness”

  1. Erie Chapman Avatar
    Erie Chapman

    Thank you for this extraordinary essay, Cathy. In particular, I appreciate you sharing the eloquent description from Virginia Wolfe about the indescribability of illness. We offer symptoms to the doctor. But, what about the loneliness and isolation we feel? What about the sense of feeling suddenly cast out from the comforts of healthy society? What can a doctor do for this? Hopefully, what caregivers can do is draw some sense about this kind of pain so that they will know, and be able to offer, the gift of loving presence to those who suffer.

    Like

  2. ~liz Wessel Avatar
    ~liz Wessel

    Cathy, I am sorry to learn of your friend’s pain and despair. I hope that she found some solace with your “sitting with” her. There is an invisible line that can separate and alienate the sufferer. Many wish to turn away and avoid for fear contact will expose them to their own human frailty and vulnerability. It takes courage to be with someone in or despair without imposing our own needs. Too often our well meaning intentions impose expectations on others-for cheerfulness, bravery to grin and bear it, and to express gratitude which may crowd out meaningful communication and any real intimacy.
    I recall the recent Journal meditation “Shared Pain” which illuminated for me the common bond of humanity in the pain that we all share.
    My friend Claudia said, “Worse than fear of death is the thought of losing my ability to be self sufficient.” My brother Johnny was fiercely independent and his tears flowed as he realized he was losing his independence. He fought to hold on to it, insisting on walking as he endured great pain rather than use a wheelchair for medical appointments. He became enraged when we tried to force the issue.
    I was struck by Woolfe’s poignantly powerful poetic expressions. I find it interesting to that our medical model recognizes pain as a subjective experience yet uses a numerical scale to quantify it and elemental language to describe pain in words, such as sharp, burning, dull, achy, etc.
    It seems important to emphasize that when living with a person who is experiencing significant illness life often loses all normalcy and balance. The focus centers on helping one’s loved one, often at the expense of self-care and resulting in neglect of one’s own health. In a real sense the caregiver is living their loved one’s illness too. There is much we can do to support a caregiver’s wellbeing.
    I appreciate the questions that you offer up for reflection. To approach another who is hurting with a sincere desire to understand what really matters to them is a good starting point.

    Like

  3. Victoria Facey Avatar
    Victoria Facey

    I have not yet dealt with a relative or loved one who communicated their journey with such a state of illness or pain. My mother was very ill before she passed, but she never acknowledged her situation. Now my father is traveling down this road and I hope to reach a tender part of him that will let me in so that I can lift him up and help where needed.
    I must say working in the home health setting has given me a clear focus of life, health and the roads we travel. My goal is to live well, take better care of myself and family – and be prepared.
    Thank you for this difficult but valuable subject.

    Like

  4. Karen York Avatar
    Karen York

    Thank you Cathy for your eloquence and love and for sharing this powerful insight.

    Like

Leave a comment