Journal of Sacred Work

Caregivers have superpowers! Radical Loving Care illuminates the divine truth that caregiving is not just a job. It is Sacred Work.

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Anne Milligan Dancing girls 2012Please Note: This guest essay was written  by my colleague Brian Beichner RN

This reflection is my personal advice to the nurse that has to deal with the loss or potential loss of a patient. My advice is simple, talk to your patient, always. I talk to them on their good days, we talk when they feel off, I have whispered in their ear as they pass, and I still talk to them when they are gone, while preparing  their body for their last journey in this world.

We will call her Dee because she deserves more than “her” or a “she” in this memory. Dee was my mom’s name, so it is as good as any for the fictitious name of this patient. Dee was near comatose when I met her. She was mute, bedbound, and receiving most of her meals through a straw. I was to bathe her, administer medications, feed her, and chart her vitals. I did this routinely for a week until it began to feel empty. Her family told me that she hadn’t responded to them in months and that she was already gone but her body would not let go. I was relatively new to nursing at the time, so I took them by their word and performed my daily duties.

Between my duties, I would observe the lovely art around the room with detailed canvas paintings bright with emotion and life. Some full of joy, others more sad or somber, but all very real even down to the brush stroke. The family had informed me that Dee had painted them all, over 60 paintings in the house, not to mention those stored in the attic. Later while caring for Dee, I told her how much I loved her paintings, particularly the one of the ballerina. I wasn't sure but I thought she smiled, but I dismissed it and carried on with my duties.

This became my new routine with Dee; I would tell her how I felt about each of her paintings while I cared for her. I never heard much from her except for the occasional moan when I had to change her position. I talked about nearly all of them but my favorite was the teal clad ballerina dancing in the pond. One day while feeding her I shared with her that I told my friend about her paintings because she was a ballerina. Dee smiled and in the softest voice I ever heard told me, “I was a dancer, I love to dance.” She smiled for a few seconds longer and then her smile faded back to blank. This remained the only time she ever spoke to me.

I cared for Dee for three more weeks before I was transferred to another patient assignment. I always talked about her paintings while I cared for her but we never had another moment like the one discussed. However, I always felt like I could see warmth in her eyes from that day forward. I don’t know if it is true or if she even really talked to me. Sometimes I wonder if it was all in my head but I will never forget the bond that was created between Dee and I on that day and how it changed my nursing career forever. I always talk to my patients, especially when they cannot seem to be “checked in”. I think it is vital that a nurse say connected with their patient in any way they can.

Dee died at the age of 97 about 3 months later, or so I was told. I don’t know if she ever knew that I was with her but she remains with me in every patient I care for. I always look for the stories on the walls of my patient’s room. I search for the “ballerina” within each patient. I hope that someday, if I am stuck in the same state of in between, someone will search for me at the time I need to be found most.

Thank you Brian Beichner RN for sharing such an incredibly moving experience with us. Special thanks as well to artist, Anne Milligan whose painting compliments this narrative like a glove to hand. This painting was not created by Dee, yet it is Divine reflection of her spirit. Thank you, Anne!

Liz Sorensen Wessel

 

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6 responses to “Days 52-53 The Ballerina”

  1. ~liz Wessel Avatar

    Brian, your encounter with Dee is an extraordinary story that touches a deep chord on several different levels. I appreciate how you chose the name Dee for your patient, which is honoring of your mom but also resonates caring for or patients as if they were a beloved family member, and who is more beloved than or own Mother? (Erie Chapman’s principle of the “Mother Test”).
    I love that you did not give up on Dee but searched for a way to connect with her on a spiritual level, to really see Dee. You discovered her Beauty in her eyes, in her art and her soul. What a precious gift you gave to her. Perhaps too, this is a future opportunity to help families “to see” their loved one with new eyes.
    Your reflection ties in so well with Erie’s reflection of this past week, as he talked about this phenomenon and is a true testimony that Love does not die. I am reminded too that Love is expansive in how your reflection connects to Erie’s writing and Anne’s artwork to your description of Dee’s painting, all with such a beautiful synchronicity.
    I cherish the way you have carried Dee with you. What a valuable experience. We learn so much from the patient’s and family members we encounter; don’t we? Also, your expressed thoughts about if I was in a predicament such as Dee and your hope of being found speaks to the quality of your empathetic nature. I was moved to tears by your reflection, Brian and I am grateful that you agreed to share your story. We read books, study, describe or write about a sacred encounter but Love can only be experienced;Love can only be lived.

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  2. Anne Milligan Avatar
    Anne Milligan

    Brian: Thank you for sharing this lovely story & thank you for all that you do!!!

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  3. JVD Avatar
    JVD

    Brian, thank you for your wonderful observation that life and love never dies.
    When I first say the post title and painting, I immediately thought of my mother and her jewelry box with the dancing ballerina. She too loved to dance but the opportunities where few in her later years. But the sound of the dancing ballerina always brought a smile.
    In reading the post I reflected on the care my mother-in-law was given during her hospice days. Her caregivers always talked with her and greeted her with a smile. She did not know why they were there but she always said she loved the care she got from them. In the last days and hours (as well as after) she was treated with dignity as a child of God.
    In celebrating her life with prayer cards and mass, her family also included a thank you to all the caregivers that helped her live her last year with grace and dignity.
    So again, thank you Brian for being there and caring, and for the Love you give.

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  4. Maureen McDermott Avatar
    Maureen McDermott

    Thank you Brian, through your words, for reminding us so powerfully of what it means to care for a human being, interacting with him or her and connecting on that deeper level where Spirit meets Spirit. Your story reinforces how others can challenge and gift us, even in what appears to be a non responsive state of being – you saw deeper into the truth of Dee. May we be inspired and imitate you.

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  5. erie chapman Avatar
    erie chapman

    Thank you, Brian and thank you Anne Milligan. Brian, your story is beautifully told as well as soulfully experienced. It seems to me that you did a wonderful job of listening as well as talking. Mainly, your healing communication is exactly what can make caregiving such a healing experience – for you as well as your lucky patients. If only every caregiver would follow your practice. Your loving care inspires and elevates the patient as a human being and lifts the caregiving experience to its highest level.
    Thank you. You are an Oscar-winning caregiver – except you do not act. You deliver the real thing!
    Anne, thank you so much for your spectacular painting. Your contribution is such a fine companion to Brian’s work – and an illumination of the gorgeous spirit of beauty and play.

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  6. ~liz Wessel Avatar

    I really enjoyed the image you shared of your mom’s jewelry box. I had one as a I child and your comments resurrected this almost lost but favored memory.

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